Our Mission

To prevent, diagnose, treat, and rehabilitate Muscular Dystrophy patients (person/child) suffering from this disease. To develop a network of NGOs to create awareness about this disease amongst the public. To create awareness amongst doctors, paramedical staff, and those associated with the medical field.

Our Objects

• To establish and/or acquire and maintain a research center and a hospital with ultra-modern facilities for Muscular Dystrophy patients.
• To establish and support professorships and services connected with muscular dystrophy science, medical science, or pharmaceutical science.
• To establish and maintain hospitals, rest houses/hostels, and provide boarding and lodging to needy and deserving students receiving education/training in relevant medical sciences.
• To provide monetary assistance to schools, colleges, universities, and institutions imparting education in Muscular Dystrophy science.
• To promote education and learning in medical (Muscular Dystrophy) and allied branches.
• To establish, maintain, and/or support libraries or reading rooms affiliated with educational institutions connected with Muscular Dystrophy or pharmaceutical sciences.

Our Activities

• To combat Muscular Dystrophy disease.
• To support worldwide research through grants and fellowships for physicians and scientists in hospitals and universities in India and abroad.
• Drug development and research on potential therapeutic agents that may arrest or reverse disease progression.
• Genetics studies of defects implicated directly or indirectly in neuromuscular diseases.
• Fundamental research on nerve and muscle, including muscle function, regulation, regeneration, biochemical changes, and nerve–muscle interaction.
• Support research programs on individual or institutional bases.

Patient & Community Support

Our trust provides diagnostic, therapeutic, and rehabilitation assistance, including follow-up care. Support includes:

• Monetary aid/subsidies for walkers, body-jackets, leg braces, wheelchairs, orthopedic shoes, motorized hospital beds, and repairs.
• Aids for day-to-day needs (heel/elbow protectors, specialized urinals, bedpans, raised toilet seats, communication devices, suction machines for aspiration, etc.).
• Social service counseling and support for clinic examinations and laboratory tests.
• Carrier screening projects supported through DNA diagnosis; genetic counseling and family screening.
• Occupational and respiratory therapy (including yoga and supportive therapies) by experts.
• Transportation support for appointments at clinics or sponsored clinics, and sponsored services for fitting braces and orthopedic devices.
• Camp programs for young patients (ages 6 to 21) with trained staff, nurses, doctors, and volunteers.
• Professional educational programs to increase awareness among physicians, nurses, and therapists; support for scientific meetings and training.
• Support for accessibility and mobility initiatives for people with disabilities, and assistance to procure community resources.