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What we do

Muscular dystrophy at a glance

Muscular dystrophy (MD) is a group of over 30 genetic diseases causing progressive weakness and degeneration of muscles.

Causes

Genetic changes that affect muscle proteins.

  • Mutations in genes responsible for muscle structure and repair
  • Inherited patterns (often X-linked or autosomal)
  • Not caused by injury or lifestyle
Risk factors

Who is more likely to be affected.

  • Family history of muscular dystrophy
  • Male sex for some types (e.g. Duchenne)
  • Known carrier status in the family
Symptoms

Early signs to be aware of.

  • Progressive muscle weakness
  • Difficulty walking, running, or climbing
  • Frequent falls, toe walking, enlarged calves
  • Breathing or heart issues in advanced stages
Effects on body

How MD can impact daily life.

  • Reduced mobility and endurance
  • Contractures and scoliosis
  • Respiratory and cardiac complications in some types
  • Fatigue and challenges with self-care
Treatment

Medications, therapies, and assistive devices.

Medications: therapies targeting specific MD types, steroids in some cases, heart medications as needed.

Therapies: physiotherapy, occupational therapy, respiratory support, nutritional guidance.

Assistive devices: braces, wheelchairs, orthotics, communication aids.

Upcoming Project by IMDS Trust: Rishil Rehabilitation Center

A rehabilitation center is a specialized facility that provides structured care, therapy, and support to help individuals recover from addiction, mental health conditions, serious injury, or illness. The center aims to restore independence, function, and dignity through medical supervision, counseling, and physical or occupational therapies, acting as a bridge between hospital discharge and returning to daily life.

About our foundation

About Us

The Indian Muscular Dystrophy Society (IMDS) is dedicated to supporting individuals and families affected by muscular dystrophy through advocacy, care, and community programmes.

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What we do

Activities

Dissemination of information about MD
Assistance for essential investigations and clear diagnosis
Psychological counseling support for warriors and parents
Events

Events by IMDS Trust

IMDS Trust arranges yearly medical camps, kite festivals, and other social events. IMDS arranges annual get-together and musical events. Every one to three years, IMDS arranges picnic trips for IMDS warriors.

Yearly medical camps, kite festivals, and social events

Annual get-together and musical events

Picnic trips for IMDS warriors every one to three years

Testimonials

Voices from our community

"Volunteering with IMDS showed me how awareness and small acts of support can change lives. I encourage others to get involved."

Priya Nair
Volunteer

"The support and guidance we received from IMDS made a difficult journey more manageable. We are grateful for the community."

Rahul Verma
Caregiver

"Collaborating with IMDS has helped our team reach more families who need clear information and coordinated care for muscular dystrophy."

Dr. Ananya Sharma
Neurologist, Partner Hospital
Leadership

Trustee board members

Mr. Bharatkumar Shantilal Shah
Mr. Bharatkumar Shantilal Shah
Founder and Managing Trustee
Shri Vaibhavbhai Babubhai Patel
Shri Vaibhavbhai Babubhai Patel
Joint Managing Trusteer
Smt. Alka R Vyas
Smt. Alka R Vyas
Trustee
Dr. Dilip Zaveri
Dr. Dilip Zaveri
Trustee
Shri Bakuleshbhai Nagar
Shri Bakuleshbhai Nagar
Trustee
Dr. Hemantbhai Brocker
Dr. Hemantbhai Brocker
Trustee
Dr. Sanjay K. Parikh
Dr. Sanjay K. Parikh
Trustee
Dr. Gaurangbhai Sindhav
Dr. Gaurangbhai Sindhav
R & D Head of genatic resercher
Harshil R. Nimavat
Harshil R. Nimavat
Volunteer Manager

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